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Cake day: June 14th, 2023

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  • Myrhial@discuss.onlinetoAsklemmy@lemmy.ml*Permanently Deleted*
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    1 year ago

    My partner was admitted to the hospital when they couldn’t inflate his collapsed lung, as it had a hole in it. They put him on a machine that uses negative pressure to keep the lung shaped as it should be. Normally the hole should close but it wasn’t. Ended up with surgery but the problem remained. They were coming up with increasingly outlandish theories as to why it wasn’t healing, even going so far as to test him for tuberculosis, and listing him as false negative for covid. They also denied him adequate pain management, until one nurse noticed and gave him ibuprofen to go with paracetamol. This was all when the covid vaccine was only just out so I had to sit by helplessly while I’m increasingly realising the level of care he is receiving doesn’t match my expectations. But he’s never even been in a hospital and self advocacy is not something he’s learned.

    Eventually they transfer him to a larger hospital. The doctor there doesn’t want to talk straight but between the lines you get the message that he feels the case was entirely mismanaged. They immediately lower the reverse pressure. Hold off on further surgery. Within days healing begins. A week later the lung is healed. It’s a miracle…

    Anyway, we looked into legal options but there was a lack of proof. The original doctor followed procedure. Yet I’m 100% convinced that because my partner smokes, has bad teeth and looks like a metalhead, there was prejudice at play. I can’t know for sure but I feel like the original doctor blamed my partner and figured she’d have to scare him straight. That didn’t help of course, he resumed smoking and he’s unwilling to seek help because of this experience. I’m honestly shocked at how this could happen, but as time goes on I’ve seen in other situations how people immediately conclude a person is lower class and thus must be treated differently. If you do one thing for yourself, look into self advocacy. Especially when it comes to medical stuff. My own level of care started to go up when I began to have a conversation with health professionals, outlining my experience and asking many questions. But I’m a middle class woman with fairly conventional looks, so there is a whole level of prejudice I immediately don’t face.


  • We’ll need to ensure that this bias against female (and also male) patients isn’t adopted by the AI. We’re already not properly testing medicine on both sexes. Medical textbooks often list stuff as more or less common in one sexe. This is entirely possible but if the data isn’t properly screened we’re just moving the problem. Data can exist and be wrong for many reasons. We should address that urgently. It is bad for everyone. I think it is plausible an AI could have reached the same conclusion here because of all the mental health problems considered far more common in women. Did anyone ever even check where the source of that data is? Because some stuff really hasn’t been rechecked in the last 50 years I’m sure.


  • I think the current defaults are fine. I only ever use dark mode but some people use both. Respecting an existing preference is the way to go imo.

    Compact is a preference, it can feel very cramped but some people have strong feelings about utilising screen space (honestly some non compact stuff is really silly, so I get it).

    Vaporwave is neat if you like it but not generic enough for a default.

    I think there is a good balance in the number of choices. I wouldn’t add to it unless it’s something distinct. I honestly wouldn’t put time into making a site theme. You could do just a colour scheme but full themes are hard. I say this as a web developer based on my own experience. Also, from that, I’ve found that if users are happy, you’re doing a really good job. Because if something is wrong or feels off you’ll hear it fast.